Nov 25, 2019, 6:21 PM

Then don't let them use it. No one should use something they know doesn't work for them.

I wouldn't allow the hospital to use hydromorphone/Dilaudid for me, despite it being 'so much stronger' than what it's emulating (morphine), due to the side effects, and their repeated insistence I should be using it instead.

I was their 'very nice cooperative patient'. They'd remarked on this multiple times. (This is probably because it was a ward full of 'what is even happening to this person' or people actively dying.) The day to day staff loved the hell out of me for this and was incredibly nice.

I warned them that on the Dilaudid, they'd have to haul me out from under the bed due to it never getting dark enough in the room to not have a stabbing perpetual light-sensitivity headache, and that anyone trying to take blood would probably end up bleeding more than me as I went quasi-feral. As I'd just been taking it before the ER to handle what we'd thought was a back injury... well, my husband just nodded along with my description of the effects, since he'd spent three days dealing with me living in a blanket cave and shrieking like a banshee at him when he turned on the lights in the bedroom's bathroom to take a shower in the morning, and threatening all manner of brutal tortures to him if he even tried to suggest anything like food.

Round two of that was really not on our agenda.

Medication sensitivities are real and not remotely fun. If you have one, pay attention to it, and insist on what works for you personally.

As a layperson, you're not going to understand another person's reaction to it if you don't have it yourself in anything but the abstract; you're just going to confuse yourself if you think they're experiencing what you do.